Huh?

Ally had her ENT appointment today, the last time we went, her ear tubes had already fallen out. There was some fluid in one ear but nothing to cause too much of a concern.

The ENT clinic was crowded as usual but surprisingly the wait wasn’t too bad. She had to have her hearing test first but I had Max with me and there was no way he was going to sit through the test in total silence. Ally had to go in for the test all on her own, she looked a bit unsure but did brilliantly. I was so proud of her!

I asked her what sort of sounds did they play for her to listen to, all she said was that they were soft. From there I knew that she had failed her hearing test. The doctor reconfirmed it and said that she now has glue ear in both her ears. This just means that there is fluid in both her ears. She was surprised at how well Ally could hear us cos based on her bad test results, she expected her hearing to be a lot worse. The thing is, Ally has been dealing with hearing issues from the day she was born. Over time she has learned to compensate for her bad hearing by watching people’s expressions, reading lips and piecing information together. We decided to withhold surgery for now, she’s just getting over the flu and sometimes that can contribute to her poor test results. In three months we will redo her hearing test and if the results are still bad, she’ll get a new set of tubes.

I’ve always wondered why cleft affected children have problems with their ears. Most of the information that I’ve read were very scientific and had lots of medical jargon. This was the clearest explanation that I could find “in cleft palate the muscles that open the Eustachian tube (tensor palatini and levator palatini) have abnormal connections thereby making the tube opening either difficult or impossible”

Whatever her next tests results may be, we’ll get through it. A new set of tubes might just be what she needs.

 

 

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1 Comment

Filed under Ally

One response to “Huh?

  1. Don

    My heart ache when I read this. I hope that she will be fine. Ally is such a brave gal and strong in character too. So mommy, you hang in there! All will be fine.

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